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For Parents: NBS Connect

 
This page has been automatically translated from English. MSDH has not reviewed this translation and is not responsible for any inaccuracies.

The Newborn Screening Connect patient registry (NBS Connect) is a web-based, self-reported patient registry, and serves as a support network for individuals, and parents or guardians of children with inherited metabolic disorders. Participating families are able to connect with one another to share useful tools such as low protein recipes, interactive health tracking tools, educational resources, professional support, and much more. NBS Connect is currently available for a limited number of disorders, beginning with Phenylketonuria (PKU) and Maple Syrup Urine Disease. Other disorders will be added over time.

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Last reviewed on May 17, 2016
Mississippi State Department of Health 570 East Woodrow Wilson Dr Jackson, MS 39216 866-HLTHY4U web@HealthyMS.com
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